الأحد، 22 أبريل 2018
الجمعة، 6 أبريل 2018
Warning: Graphic images.
I was introduced to the world of EB in 2000 when my daughter Eliza was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB).
My husband and I started the journey of being first time parents in a state of sadness, desperation, frustration and a sense of being constantly overwhelmed. In the years to come we welcomed our second child into the family, and along with the support of DEBRA Australia, family and friends, and support services we have lead a very fulfilling but restricted life which tragically came crashing down around us two weeks before Christmas last year, on December 12, 2017.
EB takes the utmost love, dedication and determination (and a sense of humour doesn’t go astray) just to name a few attributes to deal with new challenges that EB presents on a daily basis.
Everyone meets challenges in life – some things we have little or no control over – but it is how you deal with the challenges that counts. When living with EB, it’s important to make each day count!
Imagine being given a gift… A gift of life, you are so excited to become a first time mother and all you can wish for is that your child arrives safely and as that time gets closer you can’t wait to hold them.
Who would have thought a mother’s touch would cause their baby pain? This was the reality I was hit with when our beautiful baby Eliza arrived on January 28, 2000. As soon as I held her in my arms it was very apparent that there was something wrong. She was born with large raw areas extending over her feet, right leg & knee, her hands and her mouth. She was born at a local private hospital and was immediately transferred to the Royal Children’s Hospital and after a terrifying and long 2 weeks, she was diagnosed RDEB. I still remember the empty feeling that took over my whole body.
Eliza was going to be affected from a debilitating medical condition that became worse with life. It was one of the more severe types of EB and referred to as ‘the worst disease you’ve never heard
Doctors advised Eliza would be in constant pain, she required morning & evening dressing changes including salt & bleach baths which took approximately three hours, three times a week. Her fingers and toes would web and form strictures, the skin in her throat would become so tight from scar tissue that she wouldn’t be able to eat normal food, or at desperate times even be able to swallow her own saliva. Eliza would suffer from corneal abrasions which means her eyes would be closed for 3-5 days at a time, in a darkened room due to a tear on her cornea. Her mobility would be affected, she would require bandages and dressings all over her body every day of her life and she wouldn’t be able to wear normal clothes or undergarments because even the seams on the inside of the clothes would blister her skin. It was going to change our lives forever and it did.
Eliza screamed for her first 6 months, she failed to thrive due to blisters in her mouth and throat, she required various medications, up to 24 each day, and she required help throughout the night. She totally turned our lives upside down.
Severe EB requires many hospitalisations for various related complications. Eliza had over 100 general anesthetics and day admissions, and 60 admissions requiring lengthy stays.
One of many reflections of living with severe EB was on Eliza’s 15th Birthday, when she woke with a corneal abrasion. She was crying in pain, eyes were swollen & tearing, she couldn’t open them.
After she had some pain relief she settled down & sat in bed feeling her wrapped birthday presents, trying to guess what they were?
I watched & thought to myself how could life be so cruel? EB had taken away her independence, her mobility, she couldn’t eat or enjoy her birthday cake & if that’s wasn’t bad enough, it also took away the joy of opening her presents.
EB is ruthless, unforgiving, it has no boundaries and it’s sad to see how it robs individuals, especially children of a fair go in life.
When Does 'The Boss Baby: Back in Business' Season 2 Premiere? This New Series Is Perfect For Parents & Kids
Fans of the Oscar-nominated film, The Boss Baby, couldn't be more excited for the new Dreamworks' TV series, The Boss Baby: Back in Business. But since the series is on Netflix, the entire first season is available for streaming starting on Friday, April 6, which means you'll probably get through it pretty quickly. So many of you may be wondering: when does The Boss Baby: Back in Business Season 2 premiere?
Unfortunately, the series hasn't been renewed for a second season yet, but that doesn't mean it won't be in the near future. If the series is as popular as the film, it'll surely bringing in high numbers for the streaming platform. Netflix has a longterm relationship with Dreamworks, the production company behind The Boss Baby, so it wouldn't be surprising to see the series continue, especially because a sequel to the film is already slated for spring 2021.
It's clear The Boss Baby is popular and definitely has franchise potential, like other big film franchises of Dreamworks, such as How to Train Your Dragon, which has spawned the TV series, Dragons: Race to the Edge, which is now on its sixth season, as well as another series and a short film. Thus, if The Boss Baby: Back in Business is a big hit, as many expect it to be, this could just be the beginning of a lot more Boss Baby productions.
For now though there's just The Boss Baby and The Boss Baby: Back in Business. If you haven't seen the movie yet, it's currently streaming on Netflix. Then you can jump right into the TV series which picks up right where the movie left off. Boss Baby, along with his older brother and partner-in-crime, Tim, will continue to navigate the "cutthroat corporate jungle gym of Baby Corp," according to Variety. Boss Baby will also be trying to balance his work-life with his home life as well. The new series is executive produced by Emmy-winner Brandon Sawyer.
Although the show follows the same characters, the actors in the TV series will be different from those in the film. In the movie, Alec Baldwin provided the voice for Boss Baby, Jimmy Kimmel was Dad, Tobey Maguire was the narrator and Adult Tim, and Miles Bakshi was the kid version of Tim. In the show, renowned voice actor JP Karliak takes over as Boss Baby, David W. Collins plays the dad, and Twin Peaks star Pierce Gagnon plays Tim. Eric Bell Jr., who provided the voice for the triplets, will reprise his role in the TV series. It's unclear if there will also be a narrator for this particular iteration.
Netflix on YouTube
Still, despite these cast changes, the show seems to be no different than the film in terms of its hilarity and heartwarming familial moments and scenes of friendship. Plus, it's doubtful your kids will even notice the difference in the characters' voices. That being said it does look like the original cast will return for the film, so if you prefer to only hear the Boss Baby voiced by Baldwin, then you can expect him to return to the role in 2021.
Until then, definitely make sure to give The Boss Baby: Back in Business a try. It'll be a fun series to watch with your kids, and the Boss Baby's struggle to balance his work and home life is way too relatable. Honestly, The Boss Baby: Back in Businesswill most likely be just as good, if not better, than the movie that proceeded it. You can start streaming The Boss Baby: Back in Business on Netflix beginning on Friday, April 6.
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